

Privacy policy
1. About this notice
This notice explains how Skanda Vale Hospice uses personal information collected through our website, www.skandavalehospice.org. It covers the forms on the site, our email newsletter, cookies and analytics.
It does not cover the care records we keep for patients, our records about volunteers and staff, or other hospice activities. Until we publish a separate notice for those, they are explained in section 8 at the end of this page.
Who we are
Skanda Vale Hospice CIO is an independent charity providing free palliative care in West Wales (registered charity number 1166180). We are the data controller for the information described here, which means we decide how it is used.
-
Address: Skanda Vale Hospice, Saron, Llandysul, SA44 5DY
-
Telephone: 01559 371222
-
Privacy contact: Information Governance team, [email protected]
-
ICO registration number: ZA215188
Our promise to you
-
We only collect what we need to respond to you.
-
We never sell or swap your information.
-
We only email you our newsletter if you ask us to, and you can stop at any time.
-
Information about your health is only seen by the people who need it to arrange your care.
2. What we collect and why
We collect information when you fill in one of the forms on our website. We only use it for the purpose of that form.
| Form | What we collect | Why we use it |
|---|---|---|
| Care enquiry (Making a referral) | Whether you are referring yourself or someone else, and your name, email and phone. If you are referring someone else: your relationship to them, their title, name, phone, email and address, and confirmation that they agree. How you heard about us. | To talk to you about whether our care is right for you and arrange an assessment. |
| Healthcare professional callback | Your name, phone, email (optional), the best time to call, and any practical notes. | To call you back and discuss the referral. |
| Contact | Name, email, phone (optional) and your message. | To answer your enquiry. We aim to reply within seven working days. |
| Feedback | Your title and name, email (optional), phone, address, what your feedback is about, the date it relates to, a rating, your comments, and how you would like us to follow up. | To learn from your experience and improve our care. |
| Event enquiry | The event you are asking about, and your name, email and phone. | To answer questions about our events. |
| Volunteering | Your title, name, contact details and address, the role you are interested in, whether you can work or volunteer in the UK, languages you speak, any reasonable adjustments you need, details of two referees, and how you heard about us. | To discuss volunteering with you. |
| Volunteer accommodation | Title, name, email, phone, whether you can work or volunteer in the UK, whether you have a vehicle, your skills, and how you heard about us. | To discuss residential volunteering and send you our information pack. |
| Newsletter sign-up | Email address. | To send you our email newsletter. |
The contact, feedback, event enquiry, volunteering and volunteer accommodation forms also have a box you can tick to receive our email newsletter. It is never ticked for you. If you give us details of referees, please check they are happy for you to do so.
Information about health
A referral through the care enquiry or professional callback form shows that someone may need palliative care, and the callback notes may include health details. The volunteering form asks about reasonable adjustments, which may also include health information. This is special category data and needs extra protection. Please only share what is needed for a first conversation; we will ask for more at assessment.
We need the patient’s agreement before we accept a referral. If you are referring someone else, please check they are happy for you to do so. If they lack capacity to decide, we follow the Mental Capacity Act 2005.
Children
Our care services are for adults over 18, and our website is not intended for children. We do not knowingly collect information from children through it.
3. Our lawful basis
UK data protection law (the UK GDPR and the Data Protection Act 2018) says we must have a lawful basis for each use of your information.
| What we do | Lawful basis |
|---|---|
| Handle care enquiries and professional callbacks | Legitimate interests: responding to people who ask for our help. For health information, we also rely on the provision of health or social care (UK GDPR Article 9(2)(h) and the Data Protection Act 2018, Schedule 1, paragraph 2). |
| Answer contact, feedback and event enquiries | Legitimate interests: replying to people who contact us and improving our services. |
| Handle volunteering and accommodation enquiries | Legitimate interests: recruiting volunteers, and taking steps you have asked for before you volunteer with us. For information about reasonable adjustments, we rely on UK GDPR Article 9(2)(b) and the Data Protection Act 2018, Schedule 1, Part 1, paragraph 1 (our duties under the Equality Act 2010). |
| Send our email newsletter | Consent. You can withdraw it at any time using the unsubscribe link in every email. |
| Keep an email address on our suppression list after you unsubscribe | Legitimate interests: making sure we never email you again. |
| Use analytics and other non-essential cookies | Consent: through our cookie banner for Google Analytics, and by choosing to play a video or show a map. |
| Use strictly necessary cookies | Legitimate interests: making the website work securely. |
Where we rely on legitimate interests, we have checked that our use is fair and does not override your rights. You can ask us for details or object at any time (see section 7).
4. Donations, newsletter and cookies
Donations
Our website does not take donations itself. The Donate button takes you to CAF Donate, run by the Charities Aid Foundation (CAF). When you give there, CAF collects your details under its own privacy policy. CAF then passes us your details, Gift Aid declaration and donation record, and these are covered in section 8 below.
Email newsletter
If you sign up, we use Mailchimp to send our newsletter. You join only after confirming through the email Mailchimp sends you. If you sign up through one of our forms, Mailchimp also receives your name and a label showing which form you used (and, for event enquiries, which event). Mailchimp tells us whether emails are delivered and opened and which links are clicked, so we can improve what we send. Every email has an unsubscribe link.
Cookies
Cookies are small files placed on your device. Our banner asks whether you allow Google Analytics. You can change your mind at any time through the Cookie settings link at the bottom of every page.
| Type | Used for | Needs your consent? |
|---|---|---|
| Strictly necessary | Remembering your cookie choice. This is stored in your browser rather than as a cookie. | No |
| Analytics (Google Analytics) | Counting visits and seeing which pages are used, so we can improve the site | Yes |
| Embedded content (YouTube, Google Maps) | Showing our videos and maps. These load only if you choose to play a video or show a map. YouTube and Google may then set their own cookies. | Yes |
Google Analytics keeps data for 14 months. We have switched off its advertising features (Google Signals and ad personalisation), and Google Analytics does not store IP addresses. We do not use advertising or tracking cookies.
Our fonts load from Adobe Fonts on every page. Adobe sets no cookies, but receives your IP address and our website’s address, as any service does when it sends content to your browser.
Social media
Our website links to our Facebook, Instagram and YouTube pages. If you follow those links, their own privacy policies apply.
5. Who we share your information with
We do not sell, rent or swap your information. Only hospice staff and trained volunteers who need it to respond to you can see what you send us.
We use a small number of service providers to run the website. They act on our instructions under a written contract and may not use your information for their own purposes.
| Provider | What they do for us | Where data may be held |
|---|---|---|
| Cloudflare | Hosts the website and passes form submissions to Resend. Nothing you send is stored on the website | UK, EU, USA and elsewhere (global network) |
| Resend | Delivers form submissions to our inbox by email and sends your confirmation email | USA |
| Mailchimp (Intuit) | Sends our email newsletter | USA |
| Google (Analytics, Workspace) | Website statistics, and our email (Google Workspace) | USA and elsewhere |
| Adobe Fonts | Supplies the fonts used on the website | USA |
Other organisations
-
With your agreement, we may contact your GP or care team as part of assessing a referral.
-
We may share information if the law requires it, or to protect someone from serious harm.
Transfers outside the UK
Some of these providers store data in the USA. When they do, we make sure it is protected to UK standards, using the UK–US Data Bridge or the ICO’s approved contract clauses (the International Data Transfer Agreement or Addendum).
6. How long we keep your information
We keep information only as long as we need it, then delete it securely. Archiving an email does not count as deleting it.
| Information | How long we keep it |
|---|---|
| Care enquiries and professional callbacks — referral accepted | Details move into the patient’s care record (covered in section 8). The email copy is deleted within 30 days. |
| Care enquiries and professional callbacks — not taken forward | 2 years after our decision, then deleted. |
| Contact, feedback and event enquiries | 12 months after our last reply, then deleted. |
| Volunteering and accommodation enquiries — not taken forward | 6 months, then deleted. |
| Volunteering and accommodation enquiries — you become a volunteer | Details become part of your volunteer record (covered in section 8). |
| Newsletter — while subscribed | Until you unsubscribe. |
| Newsletter — after you unsubscribe | We keep your email address, name and unsubscribe record in Mailchimp so that we never email you again. |
| Form emails and delivery logs (Resend) | 30 days. This includes copies of the emails, which contain what you wrote in the form. |
| Google Analytics data | 14 months. |
| Donations made through CAF | 6 years after the end of the financial year of your last donation, as HMRC requires (covered in section 8). |
7. Security, your rights and contacting us
Keeping your information safe
Our website uses an encrypted (HTTPS) connection. Form submissions go only to named hospice inboxes, and access is limited to the people who need it. No system is completely secure, so please do not send detailed medical records through the website; we will ask for these safely at assessment.
Your rights
Under UK data protection law you have the right to:
-
ask for a copy of the information we hold about you;
-
ask us to correct information that is wrong;
-
ask us to delete your information;
-
ask us to limit how we use it;
-
object to how we use it, including when we rely on legitimate interests;
-
withdraw your consent at any time, for example by unsubscribing;
-
ask for information you gave us in a format you can move elsewhere.
Some rights only apply in certain situations. We will reply within one month, and tell you if we need longer. There is usually no charge.
Complaints
If you are unhappy with how we have used your information, please contact us first and we will try to put it right. You can also complain to the Information Commissioner’s Office (ICO) at ico.org.uk/make-a-complaint or on 0303 123 1113.
Changes to this notice
We review this notice at least once a year and publish any changes on this page. Last updated: 1 October 2026.
Contact us
Information Governance team, Skanda Vale Hospice, Saron, Llandysul, SA44 5DY
Email: [email protected] · Telephone: 01559 371222
8. Our other records
Patients & service users
This section applies to individuals who are receiving or have in the past received our clinical services, as well as individuals who have been referred to us or have enquired about our clinical services.
Types of information
If you wish to make use of our clinical services we will ask you to provide your name, address, date of birth, contact details including email and telephone, next of kin and family information, your doctor’s contact details and the details of all professionals involved with your care
Certain categories of personal information are more sensitive such as health information, racial or ethnic origin, sexual orientation, political opinions, genetics, biometrics, religious beliefs or other beliefs of a similar nature (these are called special category data). We only collect special category data where there is a need to do so or with your consent in order to provide you with the best, most personalized care. Before collecting any sensitive personal information we will make it clear to you what information we are collecting and the purposes for collecting it.
Sources of your information
We may obtain information about you directly from you, a loved one, a family member or your legal guardian. Information concerning your health or that is required to provide you with health and social care services may also be obtained directly or indirectly from your doctor, healthcare team or from the NHS.
Purposes of processing your information
Our purpose for collecting this information is so we can provide you with the best personalized, safe and effective clinical service and to comply with other clinical reporting and legal requirements.
The legal basis for processing your information
We will rely on several lawful grounds for processing your information and will seek your consent when we feel this is appropriate or when required by law to do so.
Who we share information with
We will share your information with your GP and your health care team and the emergency services in order to provide the best safe and effective care when you utilize our clinical services as well as for statistical reporting requirements. Your information will only be shared under strict guidelines to protect your privacy and your right to confidentiality. Where possible we will minimise the amount of information shared or anonymise records so as not to identify you as an individual. We will also need to share your information when required by law, regulation or codes of practice.
If you are a patient or their family or loved one, we will not share your information with our fundraising team unless you specifically ask us to, and that will only be your contact details.
Security
We are committed to ensuring that your information is secure. In order to prevent unauthorised access, disclosure, damage or loss we have put in place suitable physical, electronic and managerial procedures to safeguard your information. The personal data in our secure databases are only accessible to staff and volunteers who need to access it as an essential part of their role.
Keeping your information
We keep your personal information only for as long as it is necessary and for compliance purposes. Where your information is no longer required we will ensure it is disposed of in a secure manner.
Supporters
Types of information
For our fundraising purposes, we will need to process information such as your name, address, e-mail and telephone number. Where relevant we will also need to process other information such as your credit/debit card details, bank account details, amounts of donations and standing orders, Gift Aid declarations, IP address, participation in events, lotteries and raffles, and other relevant information you may provide to us. We also hold records of our communications with you and your communication preferences.
Sources of Information
We collect personal information about you when you ask about our activities, register for an event, buy raffle tickets or participate in a lottery or prize draw, make a donation or debit/credit card payment, sign a Gift Aid form or when you otherwise give us your personal information.
We also obtain information about you from other sources such as Virgin Money Giving, Just Giving and Funeral Directors who pass on donations you make to us, as well as from social media when you interact with us on these platforms.
Purpose of processing your information
Our purposes for collecting your information are:
- to provide you with the information, support, services, or products you have requested
- to process donations and payments we have received from you
- to claim Gift Aid on your donations
- to fulfil sales made online or through our shops
- to process your entry in our raffles, lotteries or prize draws
- to register and administer your participation in events for which you have registered
- to keep a record of your relationship with us and for internal administrative purposes
- to carry out statistical analysis and research in order to help us to understand how we are performing and how we can improve our services
- for fraud prevention, credit risk reduction or otherwise as required by law or regulation
- we may also use your personal information for other purposes which we specifically notify you about and, where appropriate, obtain your consent.
The lawful basis for processing your information
Direct Marketing
- When we write to you by post we rely on the legitimate interest lawful basis for processing your information – that is, we believe that you have an interest in seeing the hospice continue to flourish and to be there for the families that need us, and we have an interest in staying in touch with you and securing your ongoing support. On the same basis, if you have given us your telephone number we may also occasionally use the phone to call you.
- For email and SMS (text messaging), we will only contact you by these means if you have given us explicit permission to do so. Our lawful basis for processing this information is your consent.
- If you ever wish to stop hearing from us or change the type of communications you receive from us you can do so at any time by completing the supporter preference form.
Lawful basis: Legitimate Interest
We rely on our legitimate interest to process your information for matters of a non-marketing nature for example managing Gift Aid, management of your donations and regular giving payments, thanking you for your support, to keep your information up-to-date, to answer your questions, queries or requests, for financial and trend analysis.
Lawful basis: Fulfilment of a Contract
When we send you the items you have ordered through eBay, when you play our lottery or enter a raffle, the lawful basis for processing your information is the necessity to fulfil a contract.
Lawful basis: Legal Obligation
We have a legal obligation to process your information when required by law, for example for the purpose of fraud prevention or money laundering.
Who do we share your information with
Information about our supporters is held securely on our central communication database. This is a Customer Relationship Management software package called Harlequin where we store information such as contact details, donations amounts, Gift Aid declarations, events participation and other details about your interactions with the hospice. Access to this secure database is restricted to appropriately trained staff and volunteers.
We also need to share your information with trusted third parties who provide services to us such as email delivery platforms, external lottery, raffle or event management services and a range of online fundraising and sponsorship platforms. We have contracts in place with all these trusted organisations and they are only allowed to process your information in strict compliance with our instructions.
We will also share your information with HMRC to claim Gift Aid and when required by law or regulation to do so.
Security
We are committed to ensuring that your information is secure. In order to prevent unauthorised access or disclosure, loss, damage or destruction we have put in place suitable physical, electronic and managerial procedures to safeguard your information. However no data transmission over the Internet is 100% secure, therefore whilst we try to protect your personal information we cannot guarantee the security of any information you transmit to us over the Internet and you do so at your own risk.
If you use a credit or debit card to make a donation or payment we will ensure that processing is done in accordance with the Payment Card Industry Data Security Standard. You can found out more about this at: https://www.pcisecuritystandards.org/pci_security
Keeping your information
We keep your personal information only for as long as it is necessary and for compliance purposes. Where your information is no longer required we will ensure it is disposed of in a secure manner.
Volunteers & employees
This section applies to volunteers who are donating their time to support our work or have done so in the past.
It also applies to individuals who are or were employed by Skanda Vale Hospice as well as contractors, agency staff, freelance and bank staff. It also includes individuals who have expressed an interest in working for us but were unsuccessful or chose not to pursue their application.
Employees and volunteers may also choose to be supporters or donors. In this case, their contact details only will be available to the fundraising team and they will be included in our central database as supporters (please also see the Supporters section).
Types of Information
We process the information you provide in the application form and/or in your CV, this may include sensitive details such as race, ethnicity, and sexual orientation. Information of a sensitive nature may also be disclosed to us following a DBS (Disclosure and Barring Service) check or Occupational Health Screening.
Sources of Information
Information is obtained directly from your application form and CV. We also contact your referees and may obtain information from any necessary DBS checks and Occupational Health Screening.
Personal information may also be obtained for managerial purposes throughout the course of employment or volunteering at the hospice and kept on personnel files, for example, information from one-to-one’s, performance management and appraisals, on occasions health and disability information.
Purpose of Processing your information
Any information collected or requested will only be used for the purpose of recruiting, management and dismissal of employees or volunteers. Some examples of processing activities relating to staff are salaries, pensions, insurance, payroll giving, expenses, training, appraisals, discipline, promotion, illness and return to work. Personal and sensitive information will also be used for statistical reporting but only in an anonymised form to protect and respect your right to privacy.
The lawful basis for processing your information
The processing of personal details directly for employment purposes is necessary for the performance of the employment contract we have with our employees. We will rely on our legitimate interest to process personal information about employees and volunteers for purposes that are not directly related to their employment such as for appraisals and performance reviews, redeployment or restructuring purposes. Special category data will be processed if necessary for assessing an employee’s working capacity (under article 9 (2) (h) of the General Data Protection Regulation).
There are certain types of information that we must process to comply with employment laws and other regulatory requirements. Processing for these lawful requirements will occur under our legal obligation to comply with such laws.
Who do we share your information with
Information relating to the employment of staff will be shared with trusted third parties who provide us with services relating to the management of employees, for example for the payment of salaries, pensions insurance and tax. Some information will be shared with Occupational Health professionals for the purpose of determining your ability to work and undertake specific tasks.
At all times data minimisation will apply and only the necessary information will be shared to address the purposes required.
Security
We are committed to ensuring that your information is secure. In order to prevent unauthorised access, disclosure, damage or loss we have put in place suitable physical, electronic and managerial procedures to safeguard your information.
Keeping your information
We keep your personal information only for as long as it is necessary and for compliance purposes. Where your information is no longer required we will ensure it is disposed of in a secure manner.
Businesses
We interact with individuals who represent their organisations such as suppliers, contractors, buildings management, IT services etc. The legal basis for processing their information is either for the performance of a contract, complying with legal obligations or necessary to fulfil our legitimate interests in making our business relationship work.
CCTV
Closed-circuit TV operates outside our Hospice building for security and safety purposes. The information is viewed by us on a live feed and stored for 30 days after which it automatically overwrites itself. To process this information we rely on our legitimate interests in keeping the Hospice and its users and staff safe and secure.
